Au Naturale by Mz. Sixx Headlines

Friday, August 12, 2011

My Name is Mz. Sixx and I have Lupus




Where do I start…

My Name is Mz. Sixx and I have Lupus

that was very hard for me to say :(


Face Fully Made Up w/ Dermablend

Some of you are familiar with my skin troubles that I’d been experiencing for over a year. I would try different things, some worked for a while, and some never worked at all. Growing more and more frustrated and embarrassed by my skin, I went to get my prescription re filled for a facial cream my dermatologist had prescribed to me. Hoping that would be my saving grace.



Partial Makeup




As I began any normal day, I went to CVS hoping to come out with a tube of some magical cream that would clear up my adult acne (the diagnose I’d previously been given). The pharmacist informed me that my prescription required authorization. When he called to get authorization- the dr. instructed him not to fill it and have me come in his office. I thought to my self- “great, he gonna give me the sho nuff good stuff to clear this up”. I made an appointment to see the doctor the next day- never mentioning it to my husband or friends- I wasn’t the least bit concerned. I went to work late so that I could see the doctor and drop my prescription off as soon as possible.


The doctor enter the room and starred straight at my nose [insert gas face right here].



Naked Face- No Makeup- Its hard to see in the pics, but I also have a red bumpy rash



As soon as I noticed the way he was looking at me, I got scared. He began to “drill” me about what been happening to my face. He then said that my face had gotten worse since my last visit and he was concerned. CONCERNED- did he just say he was CONCERNED??? - I obviously knew my face had gotten worse- what started out as one dark spot on my forehead was now covering my nose and had spread to my checks. He did a biopsy on my nose area and took blood. I’m really anxious and nervous at this point. I’d only known people to need a biopsy when they thought they had cancer. That “c” word scares me to no end. I silently cried many days and nights, anxiously awaiting the results. The nurse called me and asked that I come to the office as soon as possible. My first word was “WHY” what’s the problem?? She wouldn’t say. She only would say that we need to discuss treatment with you- TREATMENT??? TREATMENT FOR WHAT??? Now, I’m shouting and crying at the same time. She still wouldn’t reveal anything to me and advised that I come to the office as soon as possible. I'm sure anyone else would have ran to the office, I didn’t. I did not want to hear that I had cancer. Nope, I was convincing myself and saying Hail Mary as many times as I could over the course of two days. The doctor called me wanting to know why hadn’t I come to the office and when was I coming. (Sigh), I was being a real bitch- I just out right said. LOOK, I'M NOT PAYING YOU A CO PAYMENT FOR YOU TO TELL ME I HAVE CANCER- YOU CAN TELL ME THAT OVER THE PHONE! He said “who told you, you have cancer”? You don’t have cancer- but I need you to come in the office. I’m sure he said more, but I blanked out of the conversation when he said I didn’t have cancer. So I took my lunch break and went by the office. I was calm, cool, and collected- because I thought I had just dodged a death sentence. As soon as he walked in, I began to apologize for being such a baby and bitch at the same time. He accepted my apology, and sat down, and asked me if I was familiar with Lupus. Lupus?? Ummm……..Not really- why, I asked. He hands me a bunch of pamphlets and goes on to explain to me that I have Lupus. Lupus is a chronic autoimmune disorder that can affect virtually any organ of the body. In lupus, the body's immune system, which normally functions to protect against foreign invaders, becomes hyperactive, forming antibodies that attack normal tissues and organs, including the skin, joints, kidneys, brain, heart, lungs, and blood. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. I have Discoid lupus erythematosus, which mainly affects the skin. The symptoms of this form of lupus include a rash on the face, scalp, or elsewhere. The rash may last for days or years, and can recur.



I said okkkkkkkkkk, so what I gotta do to get rid of it? He then said, he can treat the symptoms (from flare ups) but there is no cure. WAIT- STOP THE DAMN PRESS- DID YOU SAY NO CURE?? I rose up outta that chair and honestly I was MAD- the kind of mad, where you’re ready to fight. I’m not sure if I was mad at the doctor, myself, or the world, but I was furious, and I felt betrayed! (I know it doesn’t make sense-but that’s how I felt). After 20 minutes of asking multiple questions and answering questions, and FINALLY having a reason for the shortness of breath, the hot flashes, sweating, headaches, fatigue, anemia, gastrointestinal problems, weight gain/lose, insomnia, bouts with depression, and the skin rashes- it was making sense now.

I went home and instantly went to the internet so that I could educate myself on Lupus- 2 days later my brain was fried and I was full of questions. I slowly began to tell my family- starting with my husband, my kids, and my siblings. My niece who is a RN, said to me” I knew it, I was waiting on you to say something”. My sister said, she knew something was wrong because of my skin, but nonetheless I was going to be ok.

I’m a fighter and I don’t quit. I've been debating whether or not I should tell anyone. Honestly- I was embarrassed. I no longer feel embarrassed or ashamed. I HAVE LUPUS DAMNIT! It's not the scarlet letter, and I will not allow it to take over my life! I’m surrounding myself with other people who are living with Lupus, and educating myself as much as I can on the disease.

My blog will now included my battles and victories as Lupus is now a part of life. I’m not going anywhere ya’ll and I’m determined to whip Lupus A$$

Disclaimer: NONE OF YA’LL BETTER NOT START TREATING ME LIKE I'M SICK, OR WE WILL BE BEEFING!!!!!! Love ya much!!!!!

11 comments:

Lteefaw said...

Thank you so much for sharing your story

Michelle G said...

Okay...first off, this post made me cry but that last comment made me giggle. You will make it. You may have days where you will live by "The Spoon Theory" but that is okay. You are a survivor already cause you have claimed your stake at beating this DX already. Prayers are with you always to make it through your bad days and to make your good days GREAT. Love ya!

Goldilocks*n*Me said...

Wow. that's tough news. I don't know if having an "answer" is better than no answer but I'm glad you can start to get the right treatment. You're a very strong lady, I'm lol'ing at you telling the doctor he doesn't need a co-pay to tell you a diagnosis, tell you over the PHONE! But really I wish you the best as far as controlling the symptoms, etc. God Bless You!

Shay said...

i still think you look beautiful =) just treat it as a war wound. to me you still normal so i see you no differently !

allthingscuteandgirly said...

It is really brave of you to share your story, that can be hard. I honestly didn't know what lupus was until Toni Braxton announced on her show that she had it, too. Thanks for sharing your story and my prayers are with you!

Kandy said...

I love you MzSixx!! Stay strong hun! Im praying for you and whoop Lupus Butt!!!

Tracey said...

Serious crying reading this.....just remember that there is NOTHING too hard for God. You do ur part and he will do his! You stay strong and know that you have the support of me and im sure all the others in the HBS group <3

Silver Lips said...

OK! So after visually seeing every word and situation you wrote about. Girl, I know that Dr. was like " I got a live one on my hands" lol The first thing that came to mind is "Ms. Sixx don't go out without a fight" So honey kicking Lupus' azz is going to be easy for you. I love you for that, you're strong, determined and nothing can stop you from doing the best for you and those you love. If you need me i'm here for you! And no matter what you are beautiful inside and out.

Ok enough mushy stuff, what new makeup you buy lol

Love ya!

naturallady said...

Thanks for sharing. I also have a friend who was just diagnosed with Lupus a few weeks ago. I believe you are a fighter and will and will get through this.

KeeKeeAllNatural said...

Sixx, I seriously love you to pieces...You've shared am intimate part of yourself. Now watch how God move in your life.

Tasha said...

MzSixx, Thanks for sharing, but girl please you will be fine, its not a death sentence. You got thangs to do. Now, get 2 whippin' those products and planning your events. LOL!!!!!!

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